An international team of scientists has designed a new type of therapy to target the mutant toxic RNA that causes myotonic ...
The U.S. Food and Drug Administration has awarded orphan drug status to Atossa Therapeutics' (Z)-endoxifen for Duchenne ...
What is strength? Columnist Patrick Moeschen believes it's the act of persevering through events that are beyond our control.
My family and I are part of a community of boys, men, and families living with Duchenne muscular dystrophy. That community extends far beyond the U.S., where we live. Families uniquely experience ...
With her youngest son with Duchenne now using a power wheelchair at home, columnist Betty Vertin thinks her family has outgrown their house.
In boys with DMD, executive skills such as self-control begin to lag around age 8, but show signs of partial catch-up by 14, ...
With a progressive disease like FSHD, the loss of abilities and independence has an unpredictable timeline, says columnist.
The Muscular Dystrophy Association has opened applications for its 2026 college scholarship program for students with ...
Missing an important procedure because of a medical oversight causes columnist Betty Vertin to rethink caregiving for her sons with Duchenne.
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