Kabuki Syndrome Awareness Day: Celebrate Unique Stories
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Kabuki Syndrome Awareness Day: Celebrate Unique Stories
10.7K viewsOct 23, 2025
TikTokthe.changemakers.diary
After 100 days in the pediatric intensive care unit, our friend Jake is officially “bustin’ out!” Jake was born with Kabuki Syndrome, a rare multisystem genetic condition that affects 1 in every 32,000 births. Kids with this condition have extremely compromised immune systems, so when Jake caught 3 different types of pneumonia last fall, he had to be airlifted to Lurie Children’s for some extra special care. While in the PICU, Jake and his family grew a close connection with his primary nurse, J
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After 100 days in the pediatric intensive care unit, our friend Jake is officially “bustin’ out!” Jake was born with Kabuki Syndrome, a rare multisystem genetic condition that affects 1 in every 32,000 births. Kids with this condition have extremely compromised immune systems, so when Jake caught 3 different types of pneumonia last fall, he had to be airlifted to Lurie Children’s for some extra special care. While in the PICU, Jake and his family grew a close connection with his primary nurse, J
9.9K views9 months ago
FacebookAnn & Robert H. Lurie Children's Hospital of Chicago
A special day for little James 💛
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A special day for little James 💛
13.3K views10 months ago
YouTubeNorwich City Football Club
February 20 is known as Kabuki Day スマホ動画
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February 20 is known as Kabuki Day スマホ動画
614 views8 months ago
YouTube辻脇崇のHarmony of Japan
Proximal junctional kyphosis after thoracic deformity correction in a Kabuki syndrome patient.
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Proximal junctional kyphosis after thoracic deformity correction in a Kabuki syndrome patient.
515 views7 months ago
YouTubeOrtho TV : Orthopaedic Video Channel
Why Does Their Hot-and-Cold Keep You Coming Back? 5 Signs
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Why Does Their Hot-and-Cold Keep You Coming Back? 5 Signs
2 views1 day ago
YouTubeDarkMindDecoded
Celebrating World Down Syndrome Day 💛 | Representation Matters
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Celebrating World Down Syndrome Day 💛 | Representation Matters
1.3K views6 months ago
YouTubeSiskin Children's Institute
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A special day for little James 💛 James has Kabuki syndrome and was invited by @NorwichCityCSF to be a part of their Wish Day 💚 | Norwich City FC
17.7K views10 months ago
FacebookNorwich City FC
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Kabuki Syndrome | #HealthZone
1.1K views9 months ago
YouTubeZona Franca MX
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Thank you for creating brighter futures for people with Kabuki syndrome.
250 views9 months ago
YouTubeKabuki Syndrome Foundation
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28 February is Rare Disease Awareness Day, and it is a cause very dear to our heart. Kabuki Syndrome is a rare genetic disorder affecting approximately 1 in 32,000 people, and my son Koh chan is one of them. Because of its rarity, many people are not aware of its existence, including many doctors and nurses. For a disease where early intervention can make a world of difference, awareness can be all it takes to change the potential reached by someone out there yet to be diagnosed. So this rare di
29.9K viewsMar 1, 2023
TikTokkcafeandbar
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You don’t have to have it all figured out. Take the Next Step. #keeppushingforward
4 views3 hours ago
YouTubeSean Vanslyke
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UNDERSTANDING KABUKI SYNDROME | TheTole Acupuncture #datotole #thetoleacupuncture
12 views3 months ago
YouTubehong tole leong
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TV stars show up for World Down Syndrome Day
15K views6 months ago
YouTubeKea Kids News
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Meet Liam ✨ he was born with a rare condition called Kabuki syndrome. Learn about Liam’s journey to the Aerodigestive Center here at Boston Children’s Hospital! ✈️💙 #kabukiwarriors #kabukistrength | Boston Children’s Hospital
2.6K viewsAug 14, 2023
FacebookBoston Children’s Hospital
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It’s kabuki syndrome awareness month and one of the challenges with Kabuki syndrome is low muscle tone. We started physical therapy when he was just 2 months old, and it’s been a part of our routine ever since. He’s made so much progress over the years and we are so proud of him! Right now our biggest hurdle is learning to tackle the stairs. #kabukisyndromeawereness #specialneeds
476 viewsOct 7, 2025
TikTokmesa.em
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James with Kabuki Syndrome at Norwich City Wish Day
32K views10 months ago
TikToknorwichcityfc
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Why Did He Keep Interrupting My Prayers? Spiritual Abuse
1 day ago
YouTubeVictim to Warrior
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Kabuki Syndrome You probably didn't know about it!
10.7K viewsApr 10, 2025
YouTubeDr. Herman Granados | Anestesia Latina
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Kabuki Syndrome #syndrome #kabukisyndrome #symptoms #medicine
174 viewsJul 20, 2025
YouTubeNewDoctor
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