From rarity to recognition: A brighter future for rare disease patients
From rarity to recognition: A brighter future for rare disease patients
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Don’t dismiss the rare: My journey with a misunderstood illness I just wanted to share my experience with rare diseases and how they’re often misdiagnosed. It’s important to remember that just because something is rare, doesn’t mean it’s not out there. As a patient, it’s important to advocate for yourself and seek out multiple opinions if you feel like something is off. I know it can be frustrating, but don’t give up. Heather Finlay-Morreale is a pediatrician. Link in bio or visit kevinmd.com/po
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Don’t dismiss the rare: My journey with a misunderstood illness I just wanted to share my experience with rare diseases and how they’re often misdiagnosed. It’s important to remember that just because something is rare, doesn’t mean it’s not out there. As a patient, it’s important to advocate for yourself and seek out multiple opinions if you feel like something is off. I know it can be frustrating, but don’t give up. Heather Finlay-Morreale is a pediatrician. Link in bio or visit kevinmd.com/po
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Scholarship for Rare Diseases - EveryLife Foundation for Rare Diseases
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This is what living with a rare disease really looks like. It’s strength and struggle. Joy and uncertainty. Beautiful highs and the hardest lows, often in the very same day. In honor of #RareDiseaseDay, we’re shining a light on the real, unfiltered ups and downs of managing a rare, chronic illness. Because every smile, tear, laugh, and battle deserves to be seen, acknowledged, understood, and respected. #AddisonsDisease #PrimaryAdrenalInsufficiency #ShowYourStripes | EURORDIS-Rare Diseases Europ
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Snappie Hub on Instagram: "🎬 Love, Kennedy (2017) 📍 Where to Watch (USA): Stream: Amazon Prime Video, Vudu (rent/purchase) Rent/Buy: Apple TV, Google Play Movies, YouTube Movies ⭐ Ratings: IMDb 7.1/10 | Rotten Tomatoes Audience Score 88% 📖 Short Summary: Based on a true story, Kennedy Hansen’s life changes after a rare illness diagnosis, but her faith, love, and courage inspire everyone around her. A touching story of hope and resilience. 🎭 Cast / Genre / Rated: Tatum Chiniquy, Heather Beers
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